European Journal of Adapted Physical Activity 17, 4 (2024) | DOI: 10.5507/euj.2024.001

Exploring Quality Participation through Dance Movement Therapy for Parkinson’s Disease

Celina H. Shirazipour1,2*, Elizabeth Eichler3, Parissa Safai3, Rebecca L. Bassett-Gunter3
1 Department of Medicine, Cedars-Sinai Medical Center, California, USA
2 David Geffen School of Medicine, University of California Los Angeles, California, USA
3 School of Kinesiology and Health Science, York University, Ontario, Canada

The purpose of this study was to explore the utility of the six quality participation (QP) elements developed for physical activity programs for individuals with disability (autonomy, belongingness, challenge, engagement, mastery and meaning) within the context of dance movement therapy for individuals with Parkinson’s Disease. This is a single-case study with semi-structured interviews that involved eight participants (six women and two men) from a dance movement therapy program for individuals with Parkinson’s Disease, to explore participants’ experiences within the context of the QP elements. Data were analyzed using reflexive thematic analysis. Autonomy, engagement, and belongingness were identified as contributors to QP experiences. Insights were gained on the relevancy of the QP elements to assess QP among individuals with Parkinson’s Disease in a dance movement therapy physical activity program. Findings also highlight potential nuances in the understanding and application of the QP elements for different populations with disabilities. In this case study, three of the QP elements had utility in situ and advanced our understanding of the multidimensional nature of QP for individuals with Parkinson’s Disease.

Keywords: adapted physical activity, disability, autonomy, engagement, belongingness

Received: March 31, 2023; Revised: January 29, 2024; Accepted: February 9, 2024; Published online: May 19, 2024  Show citation

ACS AIP APA ASA Harvard Chicago Chicago Notes IEEE ISO690 MLA NLM Turabian Vancouver
Shirazipour, C.H., Eichler, E., Safai, P., & Bassett-Gunter, R.L. (2024). Exploring Quality Participation through Dance Movement Therapy for Parkinson’s Disease. European Journal of Adapted Physical Activity, 17, Article 4. https://doi.org/10.5507/euj.2024.001
Share...
Download citation
  • BibTeX (.bib)
  • Bookends (.ris)
  • EasyBib (.ris)
  • EndNote (.enw)
  • EndNote 8 (.xml)
  • ISI WoS (.isi)
  • Medlars (.medlars)
  • Mendeley (.ris)
  • MODS (.xml)
  • Papers (.ris)
  • RefWorks (.txt)
  • RefManager (.ris)
  • RIS (.ris)
  • MS Word (.xml)
  • Zotero (.ris)
    • Open full article

    References

    1. Ahlskog, J. E. (2011). Does vigorous exercise have a neuroprotective effect in Parkinson disease? Neurology, 77(3), 288-294. https://doi.org/10.1212/WNL.0B013E318225AB66 Go to original source... Go to PubMed...
    2. Baatile, J., Langbein, W., Weaver, F., Maloney, C., & Jost, M. B. (2000). Effect of exercise on perceived quality of life of individuals with Parkinson's disease. Journal of Rehabilitation Research and Development, 37(5), 529-534. https://pubmed.ncbi.nlm.nih.gov/11322151/
    3. Banack, H. R., Sabiston, C. M., & Bloom, G. A. (2011). Coach autonomy support, basic need satisfaction, and intrinsic motivation of paralympic athletes. Research Quarterly for Exercise and Sport, 82(4), 722-730. https://doi.org/10.1080/02701367.2011.10599809 Go to original source... Go to PubMed...
    4. Bearss, K. A., McDonald, K. C., Bar, R. J., & DeSouza, J. F. X. (2017). Improvements in balance and gait speed after a 12 week dance intervention for Parkinson's disease. Advances in Integrative Medicine, 1(4), 10-13. https://doi.org/10.1016/J.AIMED.2017.02.002 Go to original source...
    5. Boyle, G. (2008). Autonomy in long-term care: a need, a right or a luxury? Disability & Society, 23(4), 299-310. https://doi.org/10.1080/09687590802038795 Go to original source...
    6. Braun, V., & Clarke, V. (2020). One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qualitative Research in Psychology, 18(3), 328-352. https://doi.org/10.1080/14780887.2020.1769238 Go to original source...
    7. Braun, V., Clarke, V., Hayfield, N., & Terry, G. (2018). Thematic analysis. In P. Liamputtong (Ed.), Handbook of research methods in health social sciences (pp. 1-18). Springer. https://doi.org/10.1007/978-981-10-2779-6_103-1 Go to original source...
    8. Canadian Disability Participation Project. (2018). The blueprint for building quality participation in sport for children, youth, and adults with a disability. University of British Columbia.
    9. Cavanaugh, J. T., Ellis, T. D., Earhart, G. M., Ford, M. P., Bo Foreman, K., & Dibble, L. E. (2015). Toward understanding ambulatory activity decline in Parkinson disease. Physical Therapy, 95(8), 1142-1150. https://doi.org/10.2522/PTJ.20140498 Go to original source... Go to PubMed...
    10. Charmaz, K. (1983). Loss of self: a fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168-195. https://doi.org/10.1111/1467-9566.EP10491512 Go to original source... Go to PubMed...
    11. Crizzle, A. M., & Newhouse, I. J. (2006). Is physical exercise beneficial for persons with Parkinson's disease? Clinical Journal of Sport Medicine, 16(5), 422-425. https://doi.org/10.1097/01.JSM.0000244612.55550.7D Go to original source... Go to PubMed...
    12. Csikszentmihalyi, M. (2000). Beyond boredom and anxiety. Jossey-Bass. Go to original source...
    13. Dancing With Parkinson's. (2018). Dancing with Parkinson's. https://www.dancingwithparkinsons.com/
    14. Evans, M. B., Shirazipour, C. H., Allan, V., Zanhour, M., Sweet, S. N., Martin Ginis, K. A., & Latimer-Cheung, A. E. (2018). Integrating insights from the parasport community to understand optimal experiences: The Quality Parasport Participation Framework. Psychology of Sport and Exercise, 37, 79-90. https://doi.org/10.1016/J.PSYCHSPORT.2018.04.009 Go to original source...
    15. Fereday, J., & Muir-Cochrane, E. (2006). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 80-92. https://doi.org/10.1177/160940690600500107 Go to original source...
    16. Galletta, A. (2012). Mastering the semi-structured interview and beyond: From research design to analysis and publication. New York University Press. https://lawcat.berkeley.edu/record/512850
    17. Goodwin, V. A., Richards, S. H., Taylor, R. S., Taylor, A. H., & Campbell, J. L. (2008). The effectiveness of exercise interventions for people with Parkinson's disease: a systematic review and meta-analysis. Movement Disorders, 23(5), 631-640. https://doi.org/10.1002/MDS.21922 Go to original source... Go to PubMed...
    18. Guillemin, M., & Gillam, L. (2004). Ethics, reflexivity, and "ethically important moments" in research. Qualitative Inquiry, 10(2), 261-280. https://doi.org/10.1177/1077800403262360 Go to original source...
    19. Hackney, M. E., & Bennett, C. G. (2014). Dance therapy for individuals with Parkinson's disease: improving quality of life. Research and Reviews in Parkinsonism, 4, 17-25. https://doi.org/10.2147/JPRLS.S40042 Go to original source...
    20. Hackney, M. E., & Earhart, G. M. (2009). Effects of dance on movement control in Parkinson's disease: a comparison of Argentine tango and American ballroom. Journal of Rehabilitation Medicine, 41(6), 475-475. https://doi.org/10.2340/16501977-0362 Go to original source... Go to PubMed...
    21. Hanna, J. L. (2007). The power of dance: health and healing. The Journal of Integrative and Complementary Medicine, 1(4), 323-331. https://doi.org/10.1089/ACM.1995.1.323 Go to original source... Go to PubMed...
    22. Heiberger, L., Maurer, C., Amtage, F., Mendez-Balbuena, I., Schulte-Mönting, J., Hepp-Reymond, M. C., & Kristeva, R. (2011). Impact of a weekly dance class on the functional mobility and on the quality of life of individuals with Parkinson's disease. Frontiers in Aging Neuroscience, 3, 1-15. https://doi.org/10.3389/FNAGI.2011.00014 Go to original source... Go to PubMed...
    23. Hermanowicz, J. C. (2002). The great interview: 25 strategies for studying people in bed. Qualitative Sociology, 25, 479-499. https://doi.org/10.1023/A:1021062932081 Go to original source...
    24. Houston, S., & McGill, A. (2013). A mixed-methods study into ballet for people living with Parkinson's. Arts & Health, 5(2), 103-119. https://doi.org/10.1080/17533015.2012.745580 Go to original source... Go to PubMed...
    25. Kelly, M. P., & Field, D. (1996). Medical sociology, chronic illness and the body. Sociology of Health & Illness, 18(2), 241-257. https://doi.org/10.1111/1467-9566.EP10934993 Go to original source...
    26. Marshall, M. N. (1996). Sampling for qualitative research. Family Practice, 13(6), 522-526. https://doi.org/10.1093/FAMPRA/13.6.522 Go to original source... Go to PubMed...
    27. Martin Ginis, K. A., Evans, M. B., Mortenson, W. B., & Noreau, L. (2017). Broadening the conceptualization of participation of persons with physical disabilities: a configurative review and recommendations. Archives of Physical Medicine and Rehabilitation, 98(2), 395-402. https://doi.org/10.1016/J.APMR.2016.04.017 Go to original source... Go to PubMed...
    28. Nakamura, J., & Csikszentmihalyi, M. (2014). The concept of flow. Flow and the Foundations of Positive Psychology: The Collected Works of Mihaly Csikszentmihalyi (pp. 239-263). Springer. https://doi.org/10.1007/978-94-017-9088-8_16 Go to original source...
    29. Parkinson's Foundation. (2022). Statistics. https://www.parkinson.org/understanding-parkinsons/statistics
    30. Quill, T. E., & Brody, H. (1996). Physician recommendations and patient autonomy: finding a balance between physician power and patient choice. Annals of Internal Medicine, 125(9), 763-769. https://doi.org/10.7326/0003-4819-125-9-199611010-00010 Go to original source... Go to PubMed...
    31. Reeve, D. (2006). Towards a psychology of disability: the emotional effects of living in a disabling society. In D. Goodley & R.Lawthorn (Eds.). Disability and Psychology: Critical Introduction and Reflections (pp. 94-107). Palgrave. Go to original source...
    32. Shirazipour, C. H., Evans, M., Caddick N., Smith, B., Aiken A. B., Martin Ginis K. A., & Latimer-Cheung, A. E. (2017). Quality participation experiences in the physical activity domain: perspectives of veterans with a physical disability. Psychology of Sport and Exercise, 29, 40-50. https://doi.org/10.1016/j.psychsport.2016.11.007 Go to original source...
    33. Sparkes, A. C., & Smith, B. (2013). Qualitative research methods in sport, exercise and health: From process to product. Routledge. https://doi.org/10.4324/9780203852187 Go to original source...
    34. Warren, C. A. B., & Williams, K. N. (2008). Interviewing elderly residents in assisted living. Qualitative Sociology, 31, 407-424. https://doi.org/10.1007/S11133-008-9116-Y Go to original source...
    35. Westheimer, O. (2008). Why dance for Parkinson's disease. Topics in Geriatric Rehabilitation, 24(2), 127-140. https://doi.org/10.1097/01.TGR.0000318900.95313.af Go to original source...
    36. Westheimer, O., McRae, C., Henchcliffe, C., Fesharaki, A., Glazman, S., Ene, H., & Bodis-Wollner, I. (2015). Dance for PD: a preliminary investigation of effects on motor function and quality of life among persons with Parkinson's disease (PD). Journal of Neural Transmission, 122, 1263-1270. https://doi.org/10.1007/S00702-015-1380-X Go to original source... Go to PubMed...

    This is an open access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC BY 4.0), which permits use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.


    Return to the content