European Journal of Adapted Physical Activity 1, 23-34 (2008) | DOI: 10.5507/euj.2008.002
DISABLED BODIES AND STORIED SELVES: AN EXAMPLE OF QUALITATIVE RESEARCH AND NARRATIVE INQUIRY
- Qualitative Research Unit, School of Sport & Health Sciences, University of Exeter, UK
Based on life history data, this qualitative article explores the self-perceptions of a small group of men who, due to a spinal cord injury (SCI) through playing rugby union football, have made a transition from the world of the able-bodied into the world of disability where they remain to this day. The most common kinds of perceptions of self used by the men through telling their stories as they live post-SCI is focused upon in detail. The narrative analyses reveal that three types of narratives help structure and shape the ways in which these men storied their embodied perceptions of self. For the majority of the participants, the restitution narrative was drawn on, and this helped structure a restored self and entrenched self, and was linked to a disciplined body. In contrast, two people told quest narratives that constitute a perception of a self that is developing and affirmative, and a body that is communicative. For one person, the chaos narrative was foregrounded that resulted in a fragmented self-perception and a chaotic body in action. The implications of all this for disabled people's body-self relationships are critically considered.
Keywords: Disability, Narrative, Self, Body, Sport
Published: March 31, 2008 Show citation
References
- Bruner, J. (2002). Making stories. Cambridge, MA: Harvard University Press.
- Charmaz, K. (1987). Struggling for a self: Identity levels of the chronically ill. In J. Roth & P. Conrad (Eds.), Research in the sociology of health care, Vol. 6 (pp. 283- 321). Greenwich, Connecticut: JAI Press Inc.
- Charmaz, K. (1994). Identity dilemmas of chronically ill men. The Sociological Quarterly, 35(2), 269-288.
Go to original source...
- Dennett, D. (1991). Consciousness explained. Boston: Little and Brown.
- Frank, A. (1995). The wounded storyteller. Chicago: The University of Chicago Press.
Go to original source...
- Frank, A. (2005). Generosity, care, and a narrative interest in pain. In D. Carr, J. Loeser, & D. Morris (Eds.), Narrative, pain, and suffering, Vol. 34, (pp. 289-300). Seattle: IASP Press.
- Freeman, M. (2003). When the story's over: Narrative foreclosure and the possibility of self-renewal. In M. Andrews, S. Day Sclater, C. Squire & A. Treader (Eds.), Lines of Narrative (pp. 81-91). London. Routledge.
Go to original source...
- Gergen, K. (1994). Realities and relationships: Sounding in social construction. Cambridge, MA: Harvard University Press.
- Lieblich, A., Tuval-Mashiach, R., & Zilber, T. (1998). Narrative research. London: Sage.
Go to original source...
- McAdams, D. (2006). The role of narrative in personal psychology today. Narrative Inquiry, 16(2), 11-18.
Go to original source...
- Riessman, C. (2003). Performing identities in illness narrative: Masculinity and multiple sclerosis. Qualitative Research, 3(1), 5-33.
Go to original source...
- Shakespeare, T. (2006). Disability rights and wrongs. London: Routledge.
Go to original source...
- Smith, B. (in-press). The state of the art in narrative inquiry: Some reflections. Narrative Inquiry.
- Smith, B., & Sparkes, A. C. (2004). Men, sport, and spinal cord injury: An analysis of metaphors and narrative types. Disability & Society, 19(6), 509-612.
Go to original source...
- Smith, B., & Sparkes, A. C. (2005). Men, sport, spinal cord injury, and narratives of hope. Social Science and Medicine, 61(5), 1095-1105.
Go to original source...
Go to PubMed...
- Smith, B., & Sparkes, A. C. (2006). Narrative inquiry in psychology: Exploring the tensions within. Qualitative Research in Psychology, 3, 169-192.
Go to original source...
- Smith, B., & Sparkes, A. C. (2008a). Narrative and its potential contribution to disability studies. Disability & Society.
Go to original source...
- Smith, B., & Sparkes, A. C. (2008b). Changing bodies, changing narratives and the consequences of tellability: A case study of becoming disabled through sport. Sociology of Health and Illness.
- Sparkes, A. C. (1998). Athletic identity: An Achilles' heel to the survival of self. Qualitative Health Research, 8(5), 644-664.
Go to original source...
- Sparkes, A. C., & Smith, B. (2003). Men, sport, spinal cord injury and narrative time. Qualitative Research, 3(3), 295-320.
Go to original source...
- Sparkes, A. C., & Smith, B. (2005). When narratives matter. Medical Humanities, 31, 81-88.
Go to original source...
Go to PubMed...
- Swain, J., & French. S. (2000) Towards an Affirmative Model of Disability, Disability & Society, 15(4), 569-582.
Go to original source...
This is an open access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC BY 4.0), which permits use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.